Hi,
I am 16 years old and physically disabled. I have a disability called Cerebral Palsy, also known as CP. I have two out of the three types of CP. One is Spastic CP, which causes stiff and difficult movement. The 2nd kind I have is Ataxic CP, which is a disturbed sense of balance and depth perception. The Spastic CP is the most dominate in me. I also have epilepsy which is the condition of taking two or more seizures. Because of the epilepsy, I have headaches almost every day as well as this unexplainable pain in my face when I have headaches. When I tell my neurologist, he looks at me as if I am crazy; sweeping the issue under the rug by saying “Your medicine will take care of it.”
I live with my two retired elderly grandparents, who are in their mid 60s. I have a younger brother. My Dad is working out of state to provide for us. He and my mother aren’t together, and she does as she pleases.
I was wondering what if any organizations could possibly help my grandparents get a wheelchair accessible vehicle that has a lift, and space for a wheelchair. (Like one that has a row of seats taken out, or really a single seat) It would ease the stress of getting me places, such as doctor’s appointments, and etc. Currently, they’ve a ’05 Chevy Impala, and each time my chair needs to be put into the car it needs disassembled. My chair is motorized, so it itself ways at least 45 pounds, each tire weighing 50, and the battery weighing 25. My grandfather has heart disease, and diabetes. He has trouble lifting the equipment but he has no choice.
Also, there’s a pit in my backyard. It’s where a pool used to be when I was younger, but that my parents just let go when they were raising me. If there’s an organization out there that could help get that up and running again, it would be great. There’s no cure for what I have. Surgery is an option, but I’ve had my fair share already in life, and it wears off. I also don’t like being sedated- it scares me. I am able to walk in the water. No fear of falling. Water therapy is amazingly helpful.
Because my family has no help or support from anyone, and doesn’t know where to begin, the house is often full of stress because I don’t feel well, and my grandmother doesn’t know what to do, but be there for me, telling me everything will be okay.
My doctor really is no help on any of this.
Thanks in advance for any answers
-Isabel